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- Learn about approaches that people have done to outpace Parkinson’s via scientific and popular literature, social media, word-of-mouth, etc.
- Learn about the putative mechanism of action of the approach, which helps establish credibility in my eyes.
- Adopt the practice.
- Observe any changes in PD symptoms in the ensuing weeks and months.
- Depending upon the results, keep, park or adapt the approach.
My decision-making process for the adoption of new lifestyle practices to outpace Parkinson’s
In this blog, I introduce the current top ten lifestyle changes I believe are helping me to outpace Parkinson’s. The list is in no particular order as ranking the practices implies spurious precision. I also list certain practices that I’ve parked for now, as well as others that I still practice, which I cannot say have made a tangible impact. Next, I list some practices that I may explore in the future.
It is important to note that this blog only provides an account of things that I do, and it should not be considered medical advice. That is the domain of your healthcare providers.
Lifestyle changes I have implemented that appear to have a tangible impact on my PD symptoms
- Dopamine replacement therapy
- Ozone therapy
- Exercise
- Osteopathy/massage
- Ketogenic diet and fasting
- Speech therapy (SPEAK OUT! Therapy)
- Restoring circadian rhythms
- Meditation
- Tapping
- Magnesium supplementation
Lifestyle changes that I continue to implement, but for which I’ve not noticed any tangible impact on my PD symptoms
- Cold therapy
- Sauna therapy
- Drinking hydrogen water
- Vitamin D lamp (UVB)
I’ve maintained these practices due to their widely documented overall health benefits and negligible recurring costs.
Practices that I’ve parked for now
- High-dose B1 supplementation
- Lithium supplementation
- Ginkgo supplementation
- BeechBand
I’ve parked these practices because they’ve shown no clear benefits to me and incur tangible recurring costs in terms of time, money or inconvenience.
Practices that I may explore in the future
- Therapeutic use of psychedelics
- Red light/near-infrared light therapy
- Low-dose naltrexone
- Neurolinguistic programming (NLP)
- Hyperbaric oxygen therapy (HBOT)
- Facial yoga
- Medical marijuana
- Spooky 2 rife machine
- Biomagnetic Pair Therapy
- Brown’s Gas (aka HHO or HydrOxy)
- Nicotine patches, pouches or gum
- Vibration plate
I am still in the learning/research phase, with time and cost implications in some instances.
Dopamine replacement therapy
Dopamine replacement therapy (DRT), as the name suggests, supplements natural dopamine, which is in short supply in PwPs. Initially, I did not observe any beneficial effects, but a few weeks into my treatment, I noticed that my tremors appeared to ease. I did not feel any other symptom relief. However, at various times, I have inadvertently or deliberately reduced the dose, and I have found that tremor and neuropathy symptoms do increase, although the effect is somewhat delayed. Dopamine replacement therapy does not delay Parkinson’s progression, but it helps to provide a window of opportunity during which you can practice lifestyle interventions that go beyond symptom relief. Despite its imperfections, I’m very grateful for DRT. Levodopa/carbidopa is a safe and effective treatment option for Parkinson’s. In stark contrast, despite enormous research investment, there is no equivalent for Alzheimer’s disease.
Exercise
But while motivation is not a limitation in my case, I do have an issue that constrains the amount and intensity of my exercise. I have a congenital heart issue, hypertrophic cardiomyopathy (HCM), which never gave me any problems in my youth, but now limits my ability to do very strenuous workouts. So, things like high-intensity interval training, which I used to thrive on, are now beyond me.
My exercise regime, however, is very consistent, consisting of regular morning dog walks, weight training, cycling, swimming, Qigong, dancing, and play-fighting (also with our dog). I notice an increase in sluggishness and rigidity if I miss a day or two of exercise.
Ozone therapy
I invested in a home ozone setup in May 2024 and almost immediately felt the positive impacts. Among the symptomatic benefits I noticed were diminished anxiety levels, reduced neuropathy and increased flexibility. Setting up the equipment takes some time and expense, but ozone generation is straightforward once the setup is in place, and the running costs are minimal. The mainstay of my ozone therapy is ozonated water, which I drink every day. I also have a small portable infrared sauna into which I discharge ozone gas. I find the sessions to be very invigorating, but I cannot say they are any more effective than drinking the ozone water.
My home ozone setup
Osteopathy/massage
My fortnightly osteopathy and massage sessions help to alleviate aches and pains, mobilise my limbs, which have become far less fluid since PD raised its ugly head, and correct my posture, which would otherwise become more stooped and asymmetric over time. This is more than a cosmetic issue, as these changes reduce our ability to undertake simple day-to-day tasks, increase our vulnerability to falls, and impact our self-confidence.
Additionally, osteopathy and massage are likely to enhance the benefits of other lifestyle practices. One of the tenets of osteopathy is the ‘rule of the artery is supreme.’ In other words, improving blood flow by moving things around and stretching tight muscles that impede local capillary flow enables nutrients to reach the cells more effectively. Therefore, one could envisage that all the other beneficial effects of practices such as magnesium supplementation and ozone therapy are enhanced by the manual therapeutic benefits to blood flow.
I am lucky to have access to the services of Esther Barton and Braam van der Walt of Wrington Vale Osteopaths, who are outstanding practitioners and wonderful people. I cannot recommend them highly enough.
Ketogenic diet and fasting
In a nutshell, it is thought that people with Parkinson’s do not process glucose efficiently but can become more metabolically healthy by using ketones as fuel. A state of nutritional ketosis can be induced by a high-fat, moderate-protein, low-carbohydrate diet and fasting. Since adopting this practice only about three months ago, I have found much greater levels of mental clarity and an amelioration of numerous PD symptoms. It is early days, but it appears that the ketogenic approach, coupled with intermittent and prolonged fasting, is also alleviating my hypertrophic cardiomyopathy symptoms. I sincerely believe that I will maintain a predominantly ketogenic diet for the rest of my life.
Speech therapy (SPEAK OUT!)
SPEAK OUT! Therapy is based around a daily home practice which consists of several exercises which help people with Parkinson’s and related conditions retain and regain their speech and swallowing. The exercises make use of the fact that you can consciously activate your intentional motor system, which is less dependent on dopamine, to override the dopamine-based automatic motor system. Thus, activities such as speech, which are automatic for most people, can be made intentional through consistent, purposeful practice. The importance of the intentional system to PwPs and its role in retaining and regaining speech and swallowing is beautifully explained in the 25-minute video What is Parkinson’s? Which I recommend to everybody with a skin in the Parkinson’s game.
It is important to work with a certified SPEAK OUT! Therapist, both for an initial evaluation and periodic refresher sessions. I have been working with Louise Lim of Recommunicate Speech who provides excellent support.
The 'Circle of Intent' summarises the SPEAK OUT! approach to regaining and maintaining speech and swallowing in people with Parkinson’s and related disorders
Meditation
Tapping
Restoring circadian rhythms
Thomas Edison’s first commercial incandescent light bulb was invented in 1879, launching a change unprecedented in planetary history, the health effects of which are only recently being elaborated. Re-establishing natural circadian rhythms can be challenging, but it can be hacked in various ways, such as using apps that reduce blue light, wearing blue-blocking glasses, taking regular breaks outside to bask in natural light, walking barefoot on the ground, and using circadian-friendly nightlights.
Unlike many people with Parkinson’s, I sleep very well at night, which is something I do not take for granted. However, for as long as I can remember, I have suffered a massive post-lunch dip in energy. This post-prandial tiredness became a thing of the past once I adopted a suite of circadian rhythm hacks. I do still indulge in the occasional afternoon nap, but it is now more of an optional extra rather than a near necessity.
For a detailed account of the health impacts of unnatural light regimes and how to mitigate these impacts, check out my recently published Big Book of EMFs: Everything You Need to Know about Electro-smog to Optimise Your Health without Living in a Cave.
Magnesium supplementation
Magnesium is a common deficiency in people with Parkinson’s and indeed the population as a whole. Magnesium is essential in many physiological processes, including sleep and the maintenance of circadian rhythms, as well as the regulation of our autonomic nervous system, thereby impacting stress levels. Additionally, a vicious circle appears to exist, with increased stress heightening magnesium loss, thereby exacerbating the initial magnesium deficiency.
The most obvious benefit of magnesium to me is its ability to mitigate restless leg syndrome at night. I take a daily dose of 1000 mg 6 in 1 magnesium (providing 300 mg of elemental magnesium) and magnesium glycinate (providing 200 mg of elemental magnesium) every day. I virtually never get restless legs, except if I forget to take supplemental magnesium. The twitching and discomfort are cues to take the magnesium, and within half an hour, things return to normal. I cannot speak to its effect on anxiety levels, but I would not be surprised if it is helping in that regard as well.
Putting it all together
Another subjective but useful indicator of symptomatic change is the Patient-Reported Outcomes in Parkinson’s (PRO-PD) score, a self-reporting scale that assesses the nature and severity of Parkinson’s disease symptoms. It combines the scores of 35 symptoms of PD to give a rating of up to 3,500 (0-100 for each symptom). I test myself periodically. At diagnosis, I had a score of 468. At the time of writing, my score was 285.
My Parkinson’s symptom progress as measured by my PRO-PD Scores
I will post some more detailed, referenced descriptions of each of these interventions in the coming weeks. In the meantime, I would love feedback from people with Parkinson’s on the positive impacts of your favourite lifestyle intervention(s). I’m very keen to learn from the community.
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Everybody feels the pain of procrastination – when you have an important, but not always urgent, task to do but instead that you decide to just take a ‘just one minute’ to check the football results, look at Facebook, make a cup of coffee, anything to avoid tackling the job in hand. And one hour later you’ve followed the click bait trail until you are checking out 50 Hollywood actresses that are hot after 50! Then as the day progresses you decide that you’re a little tired so will invest your remaining working hours in clearing your desk and dealing with a few emails in preparation for tomorrow; the day when everything happens. Not such a problem if you act out this scenario from time to time but for the chronic procrastinator this is a daily occurrence which can, with no exaggeration, lead to a wasted life of tomorrows that never come.
In his incisive and amusing TED Talk, Inside the Mind of a Master Procrastinator, Tim Urban, calls these ‘easy and fun’ diversionary tactics the Dark Playground. They are those things that are supposed to make us feel good but they don’t; because we know that we should be doing something else, plus we haven’t earned these “rewards” for doing what needs to be done so we feel a double pain. This is what Brian Johnson has termed ‘procrastipain’. Tim Urban jokes that we have two entities struggling for control of our brain – the ‘rational decision-maker’ who works for our long-term good and the ‘pleasure monkey’ who lives only for the moment. Oftentimes, extrinsic motivations, such as an impending deadline or a looming boss, help the rational decision-maker wrestle control of our brain from the pleasure monkey via Urban’s ‘panic monster’, and we move from the Dark Playground to productive work. Everybody has deadlines but not everybody has a boss. So which groups are most vulnerable to the pain of procrastination? In my humble opinion, higher education students and the self-employed?
Ways of winning the daily duel
As somebody who has spent many years in both categories, I think I know a bit about procrastination and over time I have discovered a number of ways to win my daily duels with that pesky pleasure monkey: Goal-setting including daily and weekly mini goals; David Allen’s two-minute rule – if it takes less than two minutes just do it; the Pomodoro Technique – set your timer for 20-25 minutes, get started and allow motivation to flow from action; becoming more attached to the process (the now) rather than to outcomes (the future and never entirely controllable results of the process), accepting the fact that I cannot multitask, etc. Most of the tools in my toolbox have been gleaned from others and if you suffer from procrastination like I do I would recommend you consult the references listed at the foot of this blog. But my go-to procrastination-busting tool is the WOOP-Tap, something that you won’t find in any text that I know of. I put it together a couple of years ago as a way of combining EFT (Emotional Freedom Techniques) or Tapping with the WOOP technique detailed by Gabriele Oettingen in her paradigm-shifting book Rethinking Positive Thinking. This new mind tool thus takes its place in the proud tradition of amalgamating two powerful entities to make something new and beautiful, alongside a lengthy list of notables including the teasmade, the sofabed and Brangelina.
The WOOP Strategy: Mental Contrasting and Implementation Intentions
Before I explain my WOOP-Tap, I will give some brief background on its components. First the WOOP. Gabriele Oettingen, a Professor of Psychology at New York University and the University of Hamburg, sought to test the widely-held notion that positive thinking leads to success. Unfortunately, and contrary to what you may read in countless self-help books, the research was unequivocal; if you only focus on the positive you are less likely to achieve your intended outcome – losing weight, becoming rich, meeting the man/woman of your dreams, etc., etc., etc. Read the book for the full details of why this is but, in a nutshell, your brain cannot distinguish imagination from reality so positive visualisations trick your brain into thinking that the outcome has already been achieved. So why do the work when you are in a blissed-out state?
These findings were a blow to Oettingen because she had hoped that her research would confirm the power of positive thinking. But here’s the good news. Oettingen developed a technique she called ‘mental contrasting’; visualising your objective and then immediately confronting these dreams with the realities standing in their way in order to “circumvent the calming effects of dreaming and mobilize dreams as a tool for prompting directed action.” Unlike pure positive thinking, mental contrasting did help people to reach their goals but with one important caveat. These goals had to be believable to those holding them. If not, the motivation levels of the mental contrasters fell below those of the dreamers. This is actually a good thing as it helps us to pursue realistic goals instead of forever chasing that crock of gold at the end of the rainbow.
The final piece in the WOOP jigsaw was provided by Peter M. Gollwitzer — a fellow Professor of Psychology at New York and Oettingen’s husband. His research findings indicated that if you added an “if-then” plan to the mental contrasting you further improved people’s power to attain their goals. The ‘if’ is the stimulus for action and the ‘then’ is the action: If my boss challenges me, then I will take a deep breath before responding; if I am tempted to look at Facebook when I should be working, then I will turn off the Internet; and my personal favourite, if I don’t feel like doing [insert task here], then I will just get started because I don’t need to have it all figured out in advance - ‘Just get Started’ mantra courtesy of Timothy Pychyl.
These implementation intentions when combined with mental contrasting became the WOOP Strategy: Wish, Objective, Obstacle and Plan.
- Wish: What you want to achieve. The size of the goal and the time period is not important; it can apply to a life time goal, the next task you wish to focus on or anything in between.
- Outcome: How this achievement will benefit you.
- Obstacle: The internal obstacle or obstacles that are standing in your way.
- Plan: What simple action you can take to implement your wish.
My typical WOOP goes like this:
- Wish: Start to write an introduction to the report on x,y,z.
- Outcome: Build-up of momentum and the generation of a feeling of satisfaction.
- Obstacle: Inertia and lack of momentum.
- Plan: Set my timer for 20 minutes and just get started.
So where does the tapping come in?
Well, I tap as I WOOP so for those of you who do not know, I will explain the basics of Tapping or Emotional Freedom Techniques.
Tapping or Emotional Freedom Techniques (EFT)
Thanks to my wife Julie, who is a Certified EFT Practitioner, I learned the basics of Tapping and, before I discovered the WOOP, I had been using EFT for some time when I felt emotional blockages, large or small. Tapping your fingers on acupuncture points on the face and body calms the amygdala (the part of your brain that triggers your fight or flight response) and helps energy to flow freely throughout the body. Tapping has been shown to provide effective relief for a myriad of issues such as anxiety, depression, obesity, high blood pressure and chronic pain.
The classic EFT process involves tapping nine acupuncture points in turn and saying (aloud or to yourself) “even though I have this problem” [insert problem here], “I love and accept myself.” Following this ‘set up statement’, you come to name the problem, explore its root cause and find your own solutions while you are in a resourceful state, rather than sitting or lying passively. Tapping can be done on your own but it is better to work with a qualified therapist if you are a beginner or have complex issues to deal with. Tapping is easier to conceive of when watched rather than read about so I recommend that you consult the YouTube video linked to below for a clearer idea of what it is all about and how to do it.
Given that I knew a bit about tapping before I discovered WOOP, it seemed natural to combine the two. It is just a matter of tapping on the acupuncture points while articulating your wish, outcome, obstacle and plan. I generally do one tapping cycle of the nine acupuncture points for each letter of the WOOP but there are no hard and fast rules. My day to day WOOP-take about a minute but it will no doubt take a bit longer when you are starting out. Most of you would probably agree that tapping does looks pretty weird and it is probably not the sort of thing that you would be seen dead doing in the office. I’m lucky in that I work on my own in my garret so I do not have the ridicule of my colleagues to contend with. But for those of you who share a work environment, there are ways to WOOP-Tap in ‘stealth mode’. You can do it from the comfort of your chair, reciting your WOOP internally and tapping your thumb against each finger of one hand in turn (you have acupuncture points in your fingers). Not too obtrusive and, I think, equally effective. If even this is too embarrassing, you can WOOP-tap during a toilet break or do a session before you go to work. WOOP-Tapping is likely to work for a variety of conditions but I’ve mainly practiced it to banish procrastination so I am not qualified to comment on its wider applicability.
So, if you suffer from procrastipain try WOOP-Tapping. What have you got to lose?
Just get started, feel the satisfaction as the pleasure monkey surrenders control of your brain, and do it; again, and again and again…
References
David Allen (2002). Getting Things Done: The Art of Stress-Free Productivity. Penguin Group.
Stephen Guise (2015). How to Be an Imperfectionist: The New Way to Self-Acceptance, Fearless Living, and Freedom from Perfectionism. Selective Entertainment LLC.
Gabriele Oettingen (2014). Rethinking Positive Thinking: Inside the New Science of Motivation. Current.
Timothy A. Pychyl (2013). Solving the Procrastination Puzzle: A Concise Guide to Strategies for Change. Tarcher.
Piers Steel (2012). The Procrastination Equation: How to Stop Putting Things Off and Start Getting Stuff Done. Harper Perennial.